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Resources

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For more information and patient support:

 

The Musella Foundation for Brain Tumor Research & Information, Inc. operates as a 501 (c) (3) nonprofit public charity with a primary mission of empowering individuals facing brain tumors and their loved ones. The organization is dedicated to offering both emotional and financial support, as well as facilitating access to educational materials. Musella actively advocates for the needs of patients and works tirelessly to secure funding for pioneering brain tumor research. Their efforts are focused on making a meaningful impact on the lives of those impacted by brain tumors and fostering progress in the development of effective treatments.

The San Diego Brain Tumor Foundation (SDBTF) is committed to enhancing the well-being of brain tumor patients and their families, fostering hope, and offering essential support. SDBTF is a local grassroots nonprofit organization, designated as a 501 (c) (3) entity, dedicated to providing critical resources and support for patients and families affected by brain tumors. Founded in 2002 by Connie Reeves Campbell, who lost her husband Dennis to a brain tumor in 2000, the Foundation takes pride in being a source of solace and optimism for the local community. Their comprehensive services encompass monthly support groups, offering a helping hand during times of overwhelm, and providing financial aid to cover monthly expenses.

 

The EndBrainCancer Initiative, formerly known as The Chris Elliott Fund, was founded in May 2002 by the late Chris Elliott and his spouse. The driving force behind the establishment of this initiative and the ongoing work has always centered on the immediate accessibility of advanced treatments, research studies, and clinical trials. The founders were motivated by the frustration they encountered during their early experiences with brain cancer, particularly the lack of immediate referrals to top brain tumor specialists, neurosurgeons, neuro-oncologists, and access to advanced treatments, studies, and clinical trials. The primary mission of the EndBrainCancer Initiative is to enhance patient outcomes by expanding the range of FDA-approved treatment options and supporting research in the pharmaceutical, biotechnology, life sciences, medical device, and diagnostic industries. The organization seeks to bridge the existing gap from the initial diagnosis to immediate and expanded access to specialists, researchers, cutting-edge treatments, clinical trials, and critical care

 

Cancer Commons assists patients and their caregivers by providing them with actionable information and data, enabling them to make informed decisions while minimizing trial and error. The organization's staff scientists, in collaboration with external experts, work closely with each patient to identify and facilitate access to a personalized treatment regimen. These therapies are specifically designed to target the molecular drivers of the individual's disease, with treatment guidance drawing from the clinical experiences of previous patients. Cancer Commons also offers referrals to a wide range of services aimed at helping patients navigate the complexities of cancer care and act based on the information and recommendations provided.

 

The FibroFighters Foundation is a patient-centric advocacy and education organization with a dedicated mission to assist patients and caregivers affected by Fibrolamellar Hepacellular Carcinoma, a rare liver cancer that predominantly occurs in individuals under 40 years old. The foundation offers consultation, education, and resources to support patients and their caregivers in navigating this disease and identifying optimal treatment options for each individual. Their services are provided free of charge. More information about the foundation's approach and motivation can be found on their website.

Hyperlink each of the organizations

The following organizations are our partners:

xCures: We are listed as a collaborator on their website.  In addition, they are listed as collaborators on a variety of other websites.

Chordoma Foundation: They focus almost exclusively on a cure for Chordoma.

 

Curtana: Curtana Pharmaceuticals is developing highly targeted therapies for the treatment of brain cancer, including glioblastoma in adults and  medulloblastoma in children.

Rancho Santa Fe Foundation: A foundation that raises funds to support biomedical research.

Repertoire Genesis:   This is a Japanese company that does TCR/BCR analysis.  There may be a collaboration, but it is not listed.

MD2 Biosciences: This is a small molecule drug development company that focuses on brain tumors.  There is no known connection.

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